Motor Neurone Disease Association

The Motor Neurone Disease Association (MND Association) is a British charity established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by motor neurone disease (also known as amyotrophic lateral sclerosis or Lou Gehrig's disease).

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The aim of the MND Association is a world free of MND.

The Association's key activities include:

• Raising awareness of the condition
• Funding research
• Providing information to patients and carers
• Coordinating research through conferences and symposia
• Providing local care through a network of branches and regional care advisers
• Lobbying government

The MND Association organises the International Symposium on ALS/MND, a unique annual event which brings together leading international researchers and health and social care professionals to present and debate key innovations in their respective fields.

The Association's Chief Executive is Dr. Kirstine Knox. Since 2006 the President of the Association has been Lembit Opik, following his father's death from the disease the previous year. Patrons of the Association include Sarah, Duchess of York (following the death of a close friend's husband from the disease) and Sir David Frost.